Reminding people of the importance of smear tests by sharing your lipstick smear selfie for Cervical Cancer Prevention Week
What is #SmearForSmear?
With #SmearForSmear we want you to remind people of the importance of smear tests by sharing your lipstick smear selfie for Cervical Cancer Prevention Week #CCPW.
Smear tests (cervical screening) save 5,000 lives a year yet one in five women who are eligible to attend do not take up their invitation.
For young women aged 25-29 this rises to one in three.
#SmearForSmear allows you to remind people of the importance of smear tests by sharing your lipstick smear selfie and nominating your friends to do the same.
Together we can help prevent cervical cancer.
Put on your lipstick.
Smear your lipstick and take a selfie.
Use #SmearForSmear and @JoTrust then nominate a friend.
FDA Issues Draft Guidances for Industry on Social Media and Internet Communications About Medical Products: Designed with Patients in Mind
The U.S. FDA issued proposed guidelines for the pharmaceutical and medical device industries for posting information on social media networks and correcting misinformation posted by others.
The US Food and Drug Administration has issued a first guidance for drug and medical device companies to use when posting information about products on internet platforms with strict limits on the number of characters allowed.
Such platforms would include the microblogging site Twitter, which limits posts to 140 characters, and the sponsored links that appear with Google and Yahoo search results.
In the case of drugs, for example, the FDA said that such posts should include the brand and chemical name of the drug, and, if the post makes a claim of benefit, must also present the drug’s most serious risks.
The presentation of risks and benefits should be balanced and should be included in the same message, the FDA said. For example, a 134 character “tweet” on Twitter for a hypothetical memory loss drug called “rememberine hydrochloride,” marketed under the brand name “NoFocus,” might read: “NoFocus (rememberine HCl) for mild to moderate memory loss—may cause seizures in patients with a seizure disorder www. nofocus.com/risk.”
The FDA said, “In the above example, benefit information for NoFocus is accurate and non-misleading, and the most serious risks associated with NoFocus are communicated together with the benefit information within the tweet.”
Sponsored links on Google allow for a URL of up to 35 characters, with an additional 70 characters of explanatory text. In addition to the main link the listing may have six additional links to related information, called “Sitelinks.” Each of these Sitelinks must be 25 characters maximum and may be accompanied by an additional 35 characters of text.
As an example of an appropriate sponsored link the FDA created “ouchafol,” a hypothetical drug for severe headaches associated with traumatic brain injury, marketed as “Headhurtz.” The package insert for this hypothetical drug included a boxed warning about potential brain swelling, as well as warnings about fatal drug reactions and life threatening drops in heart rate. In this case, the FDA said, the main sponsored link might read: “Headhurtz (ouchafol)” with the link www. headhurtz.com, accompanied by the text “For severe headache from traumatic brain injury.”
The main link would then have four related Sitelinks below it, each taking readers to web pages with risk information—in this case: a “Boxed Warning” link with the text “Potential for brain swelling,” a second “Warning” link with the text “Potentially fatal drug reaction,” another “Warning” link with the text “Life threatening drop in heart rate,” and a fourth “Risk information” link with the text “Important safety information.”
The FDA commented, “If a firm concludes that adequate benefit and risk information, as well as other required information, cannot all be communicated within the same character space limited communication, then the firm should reconsider using that platform for the intended promotional message.”
A second guidance document from the FDA2 provided advice to drug and device companies that voluntarily decide to correct misinformation posted about their products—positive or negative—by an independent third party who is not under the company’s control or influence. Such corrective communications, the FDA said, should address the misinformation but should be limited to the misinformation, be “non-promotional in nature, tone, and presentation,” consistent with FDA’s required labeling of the product, and disclose that the person providing the corrective information is affiliated with the firm.
“FDA does not expect firms to submit corrections to the agency when correcting misinformation pursuant to this draft guidance; however, FDA recommends that firms keep records to assist in responding to questions that may come from the agency,” the guidance said.
Both guidance documents are open for public comment for 90 days.
Sources:
US drug regulator proposes social media guidelines for drug and medical device industry, BMJ 2014;348:g4135, 19 June 2014
FDA Issues Draft Guidances for Industry on Social Media and Internet Communications About Medical Products: Designed with Patients in Mind, FDA Voice, June 17, 2014
Download a useful infographic to use Twitter around health-related events effectively:
1. Remember, they’re following YOU 2. Be their ears and eyes too 3. Use the event hashtag 4. Be original 5. No time like the present 6. Quote of the day… 7. A picture, a thousand words etc 8. Be a Twitter advocate
Learn, engage and contribute to the Healthcare Hashtag Project
Objective:The goal of the Healthcare Hashtag Project by @symplur is to make the use of healthcare social media and Twitter more accessible for the healthcare community as a whole. By lowering the learning curve of Twitter with a database of relevant hashtags to follow, Symplur hope to help new and existing users alike to find the conversations that are of interest and importance.
Why the Healthcare Hashtag Project?
DISCOVER WHERE THE HEALTHCARE CONVERSATIONS ARE TAKING PLACE
DISCOVER WHO TO FOLLOW WITHIN YOUR SPECIALTY OR DISEASE
DISCOVER THE BEST FROM CONFERENCES IN REAL-TIME OR IN ARCHIVE
#diethylstilbestrol hashtag influencers and engagers
Twitter is a real-time information network that connects you to the latest stories, ideas, opinions and breaking news about what you find interesting. Simply select the accounts you find most compelling and follow the conversations. At the heart of Twitter are small bursts of information called Tweets…
Each Tweet is 140 characters long maximum, but don’t let the small size fool you—you can discover a lot in a little space.
You can see photos, videos and conversations directly in Tweets…
Get Value from Twitter without sending Tweets
You don’t have to build a web page to surf the web, and you don’t have to tweet to enjoy Twitter. Whether you tweet a lot or never, you have access to the voices and information surrounding all your interests. You can contribute, or just listen in and retrieve your breaking news.
Get FACS “breaking” News via Twitter
Please find a list of Twitter accounts providing updates about the Fetal Anti Convulsant Syndromes related issues
klear: find influencers that are relevant and reachable
Connect with your DES Daughter via @klear_com, explore, discover the Twitter World
klear visualizes social footprints to help you discover new people, understand their impact and find better ways to connect and increase your social media network
Impact: Activity, Amplification and Outreach quantified by objective measurements.
Network: Followers distribution, close connections and engagement stats show who’s listening on the other side of the screen.
Content Breakdown: The Best and Recent of a user’s content breakdown shows who he really is, from first hand.
Discovery: It’s a new way to search the twitter graph.
Have you seen a tweet including #FollowFriday or #FF and a list of user names preceded by the @ symbol? This tradition was born spontaneously within the Twitter community to recommend your favourite tweeps to your followers. Follow Friday is a way people recommend their followers in their tweets to other followers to follow on twitter – on Fridays…
Twitter is a real-time information network that connects you to the latest stories, ideas, opinions and breaking news about what you find interesting. Simply select the accounts you find most compelling and follow the conversations. At the heart of Twitter are small bursts of information called Tweets…
Each Tweet is 140 characters long maximum, but don’t let the small size fool you—you can discover a lot in a little space.
You can see photos, videos and conversations directly in Tweets…
You don’t have to tweet to get Value from Twitter
You don’t have to build a web page to surf the web, and you don’t have to tweet to enjoy Twitter. Whether you tweet a lot or never, you have access to the voices and information surrounding all your interests.
You can contribute, or just listen in and retrieve your breaking news.
Get DES “breaking” News via Twitter
Please find a list of Twitter accounts providing updates about the Diethylstilbestrol related issues
Wij behartigen de belangen van alle generaties die zijn blootgesteld aan DES, ofwel diethylstilbestrol. Wij zijn hét kenniscentrum op het gebied van DES.
A DES Daughter's Blog 