Watch @DES_Journal diaporama and DES Info album on Flickr.
On February 22, 2011, US Senator John Kerry and US Senator Scott Brown received a 3-page response from the FDA, per their joint letter about a DES apology. The FDA’s letter did not contain an official apology from the federal government for the DES drug disaster. However, it acknowledged the devastating health consequences of DES, explained FDA initiatives to prevent future drug disasters, and talked about DES as a “tragedy“.
The FDA closed the letter by writing, “We hope that our new tools for identifying, monitoring and mitigating drug risks will prevent other tragedies like those brought out by the widespread use of DES. We are committed to providing the public with timely and accurate drug safety information and we recognize the critical responsibility that the FDA has to protect the safety of the public’s health“.
DES daughter Andrea Goldstein began a DES group in the 1970s. She compares DES with Thalidomide, a drug used in the 1950s to treat morning sickness in pregnant women and later found to cause severe birth defects.
Their injuries are on the outside. We are injured on the inside,” says Ms. Goldstein. “We might look fine, but we’re not.
And this is probably one of the reasons why there is so much silence around the DES issues … The consequences are not in your face and it’s all very intimate and personal …