DES DiEthylStilbestrol Resources (4)

Want to know more about the pregnancy drug DiEthylStilbestrol?

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DES Cancer Link 40th Anniversary
Guest post from DES Daughter and WONDER DRUG screenwriter Caitlin McCarthy; DES cancer link 40th anniversary triggers a flurry of press coverage.

DES National Public Education Campaigns
Carol Devine radio interview on the silence around the DES issue and the difficulties to push for a DES National Education Campaign.

Can the Mediator scandal lead to justice for drug victims ?
Massive media coverage of Mediator drug scandal is parallel to the silence surrounding DES exposure but could lead to justice for drug victims.

Victory for a DES 3rd generation victim : the pharmaceutical company condemned
First 3rd generation DES Distilbène® court case. Justice is made for the victims Louis and his mother Helene. UCB Pharma is condemned.

Distilbène®: 20 Years of Legal Battle
First Distilbène® lawsuits, first victories for DES daughters, historical turning point and first victory for DES third generation against UCB Pharma.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (3)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Diethylstilbestrol DES

DES, Guilt, Fear, and other Emotions
Review of the emotions including anger, anxiety, fear, frustration and guilt felt by most diethylstilbestrol DES victims.

DES Activist outside USA
Carol Devine, Founder and Coordinator of DES Action Australia-NSW, highlights the difficulties for a DES activist to access information outside USA.

DES and Breast Cancer Risks
Are DES daughters at higher risk of Breast Cancer? What is the NHS approach in UK and what are the prevention measures?

Wanted: DES Aware Doctors
Please contact your local DES Action Group if you know a sensitive, aware doctor that you would recommend to DES victims.

DES (Diethylstilbestrol) Symposium May 2011
Find Location, Time, Speakers & Programme of May 2011 DES Symposium held in Boston U.S.A.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (2)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
My DES Daughter Journey – Introduction
The journey started with a miscarriage and an operation. Now my DES journey is taking a new start with my Diethylstilbestrol “Journal of a DES Daughter”.

My DES Daughter Journey – Doctors
I have been exposed to DES but doctors needed more evidence to accept that diethylstilboestrol had contributed to my miscarriage.

The FDA is lying by omission
M. Henderson (US FDA) and C. McCarthy (screenwriter) communication about the health benefits of limiting the use of DES diethylstilbestrol in pregnancy.

International Women’s Day March 2011
Attend Journal of a DES Daughter International Women’s Day event on Facebook. Celebrate the courage of women affected by diethylstilbestrol.

French study reveals more damaging DES side effects
Link between DES and mental illness issues revealed by a recent study conducted by M.O. Gobillard-Soyer, former director at the CNRS.

More DES DiEthylStilbestrol Resources

DES DiEthylStilbestrol Resources (1)

Want to know more about the pregnancy drug DiEthylStilbestrol?

DES-molecule image
Diethylstilbestrol DES
Journal of a DES daughter on Di-Ethyl Stilbestrol® (or diethylstilboestrol in UK). Sources DES action groups, DES exposure, DES pregnancy & DES media information.

DES Exposure
Diethylstilbestrol exposure may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES exposure.

DES Side Effects
Diethylstilbestrol side effects may have affected three generations (DES mothers, their children and grandchildren). Sources review of DES side effects.

DES Pregnancy
Diethylstilbestrol side effects are frightening, but here is a message of hope to all DES daughters living a DES pregnancy.

Distilbene® Drug
Despite warnings to discontinue using DES in pregnancy, Distilbène® continued to be prescribed to pregnant women in France until 1977.

More DES DiEthylStilbestrol Resources

YouTube DES Videos in English

The story of the multi generations DiEthylStilbestrol tragedy in videos

YouTube DiEthylStilboestrol’s Channel – Arthur L Herbst, MD – 40th Anniversary of DES Paper
2011. “Commemorating Arthur L Herbst and the 40th Anniversary of His Landmark DES Paper“.

YouTube DiEthylStilboestrol’s Channel – WCVB-TV “Chronicle” Segment on DES Diethylstilbestrol
2011. “February 18, 2011–WCVB-TV Boston’s newsmagazine “Chronicle” interviewed longtime DES activist/DES historian Andrea Goldstein, DES Daughter and “Wonder Drug” screenwriter Caitlin McCarthy, and DES researcher Dr. Julie Palmer for its segment on DES (diethylstilbestrol)“.

YouTube DiEthylStilboestrol’s Channel – DES concerns: The next generation
2011. “DES has consequences for those who took it, their children and maybe their grandchildren“.

YouTube DiEthylStilboestrol’s Channel – Caitlin McCarthy of Wonder Drug at 2010 AOF Fest
2010. “Meet the incredibly talented Caitlin McCarthy, author of the fantastic screenplay WONDER DRUG from her Award Winning appearance at the 2010 AOF Festival in Pasadena CA 2010. The multi-award winning writer talks about her work in this interview“.

YouTube DiEthylStilboestrol’s Channel – Hearing DES Daughters
2010. “IES113Hearing DES DAUGHTERS“.

YouTube DiEthylStilboestrol’s Channel – New Cervical Cancer Screening Guidelines
2009. “Women at increased risk have a higher chance of getting cervical cancer than women at average risk. Women at increased risk include those who have: Diethylstilbestrol (DES) exposure before birth“.

YouTube DiEthylStilboestrol’s Channel – Question on Ectopic Pregnancies
2009. “AN ECTOPIC PREGNANCY IS SERIOUS: CONSULT YOUR DOCTOR. Answering the Question for DprJones“.

More DES DiEthylStilbestrol Resources

Flickr DES Photos Sets

Picture galleries available with social networking, chat, groups, and photo rating

flickr sets
Flickr DES Diethylstilbestrol’s Sets – Australia
DES Action Australia-NSW was established in 1995 by Carol Devine, DES daughter, DES activist, founder and coordinator of the Sydney based group.

Flickr DES Diethylstilbestrol’s Sets – Books
DES Diethylstilbestrol’s Sets – Books

Flickr DES Diethylstilbestrol’s Sets – DES Info Blog
DES Info is not an official organization or group. It was created by several DES Daughters as a way to proactively share information about DES.

Flickr DES Diethylstilbestrol’s Sets – Drugs
Diethylstilbestrol or DES was sold under many brand names including Distilbène®, Stilboestrol-Borne®, Benzestrol®, Chlorotrianisene®, Estrobene® and Estrosyn® to name just a few.

Flickr DES Diethylstilbestrol’s Sets – Events
Symposiums, colloques, seminars and other DES events from around the world.

Flickr DES Diethylstilbestrol’s Sets – France
The support group Réseau DES France was established in 1994. They’ve achieved many results and successes such a the right to longer maternity leave for DES pregnancies.

Flickr DES Diethylstilbestrol’s Sets – Media
DES media news. Press cuttings from around the world

Flickr DES Diethylstilbestrol’s Sets – Research
DES Diethylstilbestrol’s Sets – Research

Flickr – DES Diethylstilbestrol’s Sets – USA
DES Action USA is a non-profit organization whose mission is to identify, educate, provide support to, and advocate for DES-exposed individuals as well as educate health care professionals.

Why a new DES blog ?

To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness

image of a dandelion
To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.

DES Daughter Network is the little sister of Diethylstilbestrol, Journal of a DES Daughter but focuses on social media and social networking. The purpose of this blog is to share the latest DES news and updates from around the world as and when they are published all under one “roof”, one social media platform. It features and displays the social networks where DES groups and myself have a social media presence to further raise awareness of the DES cause and connect the dots between existing organizations.

Why a new blog?

Around the world, thousands, maybe millions of people are totally unaware that they were exposed to diethylstilbestrol (or DES), a toxic and carcinogenic drug. All of these people are not receiving proper medical treatment, or making truly informed decisions about their healthcare, as a result.

How do you reach out to these people?  One answer which immediately came to my mind when I started writing my Journal of a DES Daughter is through the use of social media and social networking.

Nowadays, social media and social networking tools are vital to building a strong online presence. The use of social media is stronger than ever. Twitter, Facebook, YouTube, Flickr are just some of the popular forms of social media used by millions around the world on a daily basis. Chances are, anyone you speak to today has at least one, if not more of these accounts.

To me, social media is simply the easiest, fastest and cheapest, yet effective way to raise DES awareness.

The 4 “C’s of Social Media for the DES cause
Connect, Contribute, Collaborate, Change

  • Connect: DES, like social media, is about people. People affected by this drug disaster often feel lonely and would benefit from connecting with other DES victims.
  • Contribute: DES information needs to be instantly available to the public to generate an instant reaction and increase awareness.
  • Collaborate: DES is a worldwide tragedy. DES information, studies and data need to be shared to better understand the full extent of the health issues associated with DES exposure. Social media increases potential for collaboration.
  • Change: The DES story needs to be told not just through studies, statistics, numbers and figures but through real life experiences. The collective voice of DES victims on social media platforms can bring about change. Lessons must be learned so that history doesn’t repeat itself.

Despite the number of people affected by the DES tragedy and the hard work of DES support groups and activists, the DES cause is going unnoticed, or not noticed enough amongst the general public. The use of social media has the ability to change this. In today’s fast-moving world, we will make a difference and bring about change only if we connect, contribute, and collaborate.

More DES DiEthylStilbestrol Resources