International Clinical Trials Day
International Clinical Trials Day is celebrated around the world on or near the 20 May each year, to commemorate the day that James Lind started his famous trial on the deadly disease scurvy. It provides a focal point to raise awareness of the importance of research to health care, and highlights how partnerships between patients and healthcare practitioners are vital to high-quality, relevant research.
Posted by DES Daughter on 20/05/2013
http://desdaughter.wordpress.com/2013/05/20/today-is-international-clinical-trials-day-in-uk-by-nhschoices-nhs-alltrials/
Promote the OK to ask campaign across the country.
During 2013/14 The National Institute for Health Research (NIHR) is promoting the fact that it’s OK to ask about clinical research. The campaign is aimed at patients, medical professionals and the public. Everyone can get involved and help spread the word that it’s OK to ask about clinical research. f you have a medical condition and are undergoing treatment, the NHS would like you to ask your family doctor, nurse or consultant about clinical research, and whether it might be right for you.
Posted by DES Daughter on 10/05/2013
http://desdaughter.wordpress.com/2013/05/10/uk-nhs-ok-to-ask-about-clinical-research-get-involved-with-officialnihr-ok-to-ask-campaign/
“ We all assume that doctors choose treatments based on what’s best for us. But would you feel nervous if you knew that your doctor stood to make money from the treatments they recommend? “
Read As new NHS reforms turn GPs into businessmen, one doctor asks… do you really want them to profit from the pills they prescribe? by Ben Goldacre
Posted by DES Daughter on 24/03/2013
http://desdaughter.wordpress.com/2013/03/24/uk-nhs-reforms-do-we-want-doctors-to-make-money-from-their-prescriptions/
” … A new criminal offence to stop NHS hospitals “fiddling” official figures is to be introduced by ministers in the wake of the Mid Staffordshire scandal… … Jeremy Hunt, the Health Secretary, is to announce that senior NHS managers and hospital trusts will be held criminally liable if they manipulate figures on waiting times or death rates … “
Read New criminal offence to stop NHS hospitals ‘fiddling’ figures to be introduced by Robert Winnett, Political Editor, The Telegraph
Posted by DES Daughter on 16/03/2013
http://desdaughter.wordpress.com/2013/03/16/uk-future-nhs-aiming-to-a-more-open-culture-with-better-information-for-patients-and-the-public/
Great except that I won’t get an “invitation” before I turn 50 even though a recent study concluded that DES Daughters over the age of 40 are at a significantly increased risk for breast cancer …
UK Guidelines: Read Diethylstilbestrol (DES) exposed women and breast screening and about being breast aware in the United Kingdom
In Australia, there are problems too, on the matter of acquiring annual breast screening… Read Our Breast Screening Behind The Scenes by Carol Devine
Posted by DES Daughter on 30/01/2013
http://desdaughter.wordpress.com/2013/01/30/nhs-breast-cancer-screening-programme/
DES, Guilt, Fear, and other Emotions
Review of the emotions including anger, anxiety, fear, frustration and guilt felt by most diethylstilbestrol DES victims.
DES Activist outside USA
Carol Devine, Founder and Coordinator of DES Action Australia-NSW, highlights the difficulties for a DES activist to access information outside USA.
DES and Breast Cancer Risks
Are DES daughters at higher risk of Breast Cancer? What is the NHS approach in UK and what are the prevention measures?
Wanted: DES Aware Doctors
Please contact your local DES Action Group if you know a sensitive, aware doctor that you would recommend to DES victims.
DES (Diethylstilbestrol) Symposium May 2011
Find Location, Time, Speakers & Programme of May 2011 DES Symposium held in Boston U.S.A.
Posted by DES Daughter on 25/09/2011
http://desdaughter.wordpress.com/2011/09/25/resources-3/
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