“I leave in a constant state of fear” explains a 48 year-old DES daughter who recently took her DES story to court as part of a 53-woman civil law suit. She was diagnosed with breast cancer two years ago and like all these women she was exposed to DES before birth. In this poignant video, she and her mother tell us about the guilt, anger and fear attached to this drug and how it is affecting their day to day lives.
The women in this study were followed as part of the National Cancer Institutes (NCI)’s DES Follow-up Study, which began in 1992.
In addition, researchers are studying possible health effects on the grandchildren of mothers who took DES during pregnancy, because some of the genetic changes caused by DES exposure in the womb may be inherited.